Karen L Hargrave, a freelance researcher and policy analyst based in London, UK, shares her experience of being diagnosed with long covid and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) along with her husband. She developed long covid in 2020 and her husband in 2022. While she is more functional with limitations on exertion, her husband is severely affected. She resonates with Jreidini’s account of spending hours scouring research on these conditions. Hargrave’s personal experience highlights the challenges faced by individuals living with long covid and ME/CFS, emphasizing the need for more research and understanding of these conditions.
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Long covid: I’d rather have a well researched and well informed doctor than “become my own physician”
