Sammy Basso, a biologist and spokesperson for the progeria patient community, passed away at 28. Despite his genetic disorder that prevented weight gain, he found humor in his situation, often joking about his appearance. Basso lived with progeria, an ultra-rare disease that speeds up biological time, but he approached life with optimism and gratitude. His contributions to the field of progeria research, including volunteering for clinical trials and working on gene therapy, were significant. Basso’s remarkable personality, blending brilliance with kindness, left a lasting impact on those around him. His sudden passing was a shock, but his legacy of optimism and resilience lives on.
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How Sammy Basso’s short life changed rare disease research
