Caregivers of pediatric rheumatology patients transitioning to adult care reported a lack of clear information on the necessary procedures. A study presented at the EULAR 2024 Congress surveyed 394 individuals, finding that up to 30% of caregivers felt they did not have enough information about the transition. The study also highlighted deficiencies in continuity of care, with bureaucracy prolonging the transition process and insufficient communication among specialists. The emotional and psychological aspects of transitioning to a new medical environment were also noted as challenges. Addressing the lack of clear information during the transition process was emphasized as a crucial issue that needs more attention.
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Transition from pediatric to adult rheumatic care plagued by ‘lack of clear information’
