Spontaneous intracranial hypotension (SIH) has a significant impact on physical, mental, and quality of life for those affected by the condition. A survey revealed that the top complaints among participants were head pain, neck pain, and brain fog. The most common treatment, an epidural blood patch, only resolved symptoms in 16.3% of those surveyed. The median time to diagnosis was 2 years, with many participants experiencing misdiagnosis and dismissal of symptoms by healthcare providers. The impact of SIH on daily life was substantial, affecting relationships, employment, finances, transportation, and faith. Cognitive problems were also more prevalent in this cohort compared to other reported cases.
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Spontaneous intracranial hypotension significantly affects quality of life
