EHS
EHS

Subjective health perception prioritizes psychological well-being over physical function in advanced ALS: A multigroup structural equation modeling analysis


    • Robbins R.A.
    • Simmons Z.
    • Bremer B.A.
    • Walsh S.M.
    • Fischer S.

    Quality of life in ALS is maintained as physical function declines.

    Neurology. 2001; 56: 442-444

    • Simmons Z.
    • Bremer B.A.
    • Robbins R.A.
    • Walsh S.M.
    • Fischer S.

    Quality of life in ALS depends on factors other than strength and physical function.

    Neurology. 2000; 55: 388-392

    • Chio A.
    • Gauthier A.
    • Montuschi A.
    • et al.

    A cross sectional study on determinants of quality of life in ALS.

    J. Neurol. Neurosurg. Psychiatry. 2004; 75: 1597-1601

  • Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes.

    JAMA. 1995; 273: 59-65

    • Young C.A.
    • Ealing J.
    • McDermott C.
    • et al.

    The relationships between symptoms, disability, perceived health and quality of life in amyotrophic lateral sclerosis/motor neuron disease.

    Amyotroph Lateral Scler Frontotemporal Degener. 2019; 20: 317-327

  • Structural equation modeling in medical research: a primer.

    BMC Res Notes. 2010; 3: 267

    • Cedarbaum J.M.
    • Stambler N.
    • Malta E.
    • et al.

    The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS study group (phase III).

    J. Neurol. Sci. 1999; 169: 13-21

    • Kroenke K.
    • Spitzer R.L.
    • Williams J.B.

    The PHQ-9: validity of a brief depression severity measure.

    J. Gen. Intern. Med. 2001; 16: 606-613

  • EQ-5D: a measure of health status from the EuroQol group.

    Ann. Med. 2001; 33: 337-343

    • Katzan I.
    • Speck M.
    • Dopler C.
    • et al.

    The knowledge program: an innovative, comprehensive electronic data capture system and warehouse.

    AMIA Annu Symp Proc. 2011; 2011: 683-692

    • Thakore N.J.
    • Lapin B.R.
    • Kinzy T.G.
    • Pioro E.P.

    Deconstructing progression of amyotrophic lateral sclerosis in stages: a Markov modeling approach.

    Amyotroph Lateral Scler Frontotemporal Degener. 2018; 19: 483-494

    • Forkmann T.
    • Gauggel S.
    • Spangenberg L.
    • Brahler E.
    • Glaesmer H.

    Dimensional assessment of depressive severity in the elderly general population: psychometric evaluation of the PHQ-9 using Rasch analysis.

    J. Affect. Disord. 2013; 148: 323-330

  • Screening for depression in primary care: a Rasch analysis of the PHQ-9.

    BJPsych Bull. 2016; 40: 237-243

  • Principles and Practice of Structural Equation Modeling.

    3rd ed. Guilford Press,
    New York2011

  • Simultaneous factor analysis in several populations.

    Psychometrika. 1971; 36: 409-426

  • A general method for studying differences in factor means and factor structures between groups.

    Br. J. Math. Stat. Psychol. 1974; 27: 229-239

  • Mplus For Structural Equation Modeling: A Researcher’s Guide.

    2nd ed. Sage Publications, Inc.,
    2015

  • Measurement invariance, factor analysis, and factorial invariance.

    Psychometrika. 1993; 58: 525-543

    • Putnick D.L.
    • Bornstein M.H.

    Measurement invariance conventions and reporting: the state of the art and future directions for psychological research.

    Dev. Rev. 2016; 41: 71-90

    • Ioannou M.
    • Kassianos A.P.
    • Symeou M.

    Coping with depressive symptoms in Young adults: perceived social support protects against depressive symptoms only under moderate levels of stress.

    Front. Psychol. 2018; 9: 2780

  • The structure of self-reported health in chronic disease patients.

    Psychological Assessment: A Journal of Consulting and Clinical Psychology. 1990; 2: 22-30

    • Farivar S.S.
    • Cunningham W.E.
    • Hays R.D.

    Correlated physical and mental health summary scores for the SF-36 and SF-12 health survey, V.I.

    Health Qual. Life Outcomes. 2007; 554

    • van Groenestijn A.C.
    • Kruitwagen-van Reenen E.T.
    • Visser-Meily J.M.
    • van den Berg L.H.
    • Schroder C.D.

    Associations between psychological factors and health-related quality of life and global quality of life in patients with ALS: a systematic review.

    Health Qual. Life Outcomes. 2016; 14: 107

  • Patient-perceived outcomes and quality of life in ALS.

    Neurotherapeutics. 2015; 12: 394-402

    • Hays R.D.
    • Marshall G.N.
    • Wang E.Y.
    • Sherbourne C.D.

    Four-year cross-lagged associations between physical and mental health in the medical outcomes study.

    J. Consult. Clin. Psychol. 1994; 62: 441-449

    • Ohrnberger J.
    • Fichera E.
    • Sutton M.

    The relationship between physical and mental health: a mediation analysis.

    Soc. Sci. Med. 2017; 195: 42-49

    • Barnett K.
    • Mercer S.W.
    • Norbury M.
    • Watt G.
    • Wyke S.
    • Guthrie B.

    Epidemiology of multimorbidity and implications for health care, research, and medical education: a cross-sectional study.

    Lancet. 2012; 380: 37-43

    • Stewart A.L.
    • Greenfield S.
    • Hays R.D.
    • et al.

    Functional status and well-being of patients with chronic conditions. Results from the medical outcomes study.

    JAMA. 1989; 262: 907-913

    • Schwartz C.E.
    • Andresen E.M.
    • Nosek M.A.
    • Krahn G.L.
    • Measurement REPoHS.

    Response shift theory: important implications for measuring quality of life in people with disability.

    Arch. Phys. Med. Rehabil. 2007; 88: 529-536

  • Using structural equation modeling to detect response shifts and true change.

    Qual. Life Res. 2005; 14: 587-598

    • Ilie G.
    • Bradfield J.
    • Moodie L.
    • et al.

    The role of response-shift in studies assessing quality of life outcomes among Cancer patients: a systematic review.

    Front. Oncol. 2019; 9: 783

    • Oreel T.H.
    • Nieuwkerk P.T.
    • Hartog I.D.
    • et al.

    Response shift after coronary revascularization.

    Qual. Life Res. 2022; 31: 437-450

    • King-Kallimanis B.L.
    • Oort F.J.
    • Nolte S.
    • Schwartz C.E.
    • Sprangers M.A.

    Using structural equation modeling to detect response shift in performance and health-related quality of life scores of multiple sclerosis patients.

    Qual. Life Res. 2011; 20: 1527-1540

    • Lule D.
    • Ehlich B.
    • Lang D.
    • et al.

    Quality of life in fatal disease: the flawed judgement of the social environment.

    J. Neurol. 2013; 260: 2836-2843

    • McDonald E.R.
    • Hillel A.
    • Wiedenfeld S.A.

    Evaluation of the psychological status of ventilatory-supported patients with ALS/MND.

    Palliat. Med. 1996; 10: 35-41

  • Control theory: a useful conceptual framework for personality-social, clinical, and health psychology.

    Psychol. Bull. 1982; 92: 111-135

    • Diener E.
    • Lucas R.E.
    • Scollon C.N.

    Beyond the hedonic treadmill: revising the adaptation theory of well-being.

    Am Psychol. 2006; 61: 305-314

    • Rabkin J.G.
    • Albert S.M.
    • Del Bene M.L.
    • et al.

    Prevalence of depressive disorders and change over time in late-stage ALS.

    Neurology. 2005; 65: 62-67

    • Averill A.J.
    • Kasarskis E.J.
    • Segerstrom S.C.

    Psychological health in patients with amyotrophic lateral sclerosis.

    Amyotroph. Lateral Scler. 2007; 8: 243-254

  • Depression in ALS in a large self-reporting cohort.

    Neurology. 2016; 86: 1031-1038

    • Vazquez Medrano C.R.
    • Aho-Ozhan H.E.A.
    • Weiland U.
    • Uttner I.
    • Ludolph A.C.
    • Lule D.

    Disease progression but not physical state per se determines mental wellbeing in ALS.

    J. Neurol. 2020; 267: 3593-3601

  • Correlates of subjective health in older adults: a meta-analysis.

    Psychol. Aging. 2001; 16: 414-426

  • Health status perspectives in amyotrophic lateral sclerosis.

    Neurodegener. Dis. 2017; 17: 323-329

  • Response shift recalibration and reprioritization in health-related quality of life was identified prospectively in older men with and without stroke.

    J. Clin. Epidemiol. 2014; 67: 500-507

    • Yang J.
    • Hanna-Pladdy B.
    • Gruber-Baldini A.L.
    • et al.

    Response shift – the experience of disease progression in Parkinson disease.

    Parkinsonism Relat. Disord. 2017; 36: 52-56

    • Van den Berg J.P.
    • Kalmijn S.
    • Lindeman E.
    • et al.

    Multidisciplinary ALS care improves quality of life in patients with ALS.

    Neurology. 2005; 65: 1264-1267

    • Lee H.
    • Vlaev I.
    • King D.
    • Mayer E.
    • Darzi A.
    • Dolan P.

    Subjective well-being and the measurement of quality in healthcare.

    Soc. Sci. Med. 2013; 99: 27-34



  • Source link

    EHS
    Back to top button