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Lifelong Care: Advocating, Navigating, and Managing Your Path: School, Work, Disability


Thank you to everyone who participated in our live webinar “Advocating, Navigating, and Managing Your Path: School, Work, Disability” on August 15th, 2022, as part of our Heart Connection 2022 webinar series. Read on for the summary and full video presentation.

We couldn’t meet in person in Washington D.C. this year, however, we felt our community would benefit from the incredible content we’d planned. Heart Connection 2022 Virtual Education Series presents all of our favorite topics from the annual conference in an easy-to-attend, easy-to-digest format – for all those impacted by CHD – patients, family members, and care team members.  Our educational sessions will include live and pre-recorded presentations and panel discussions featuring experts in the field, as well as the patients and families who experience all aspects of CHD in their daily lives. For full program details, please visit our Heart Connection 2022 website: https://www.conqueringchd.org/involvement/heart-connection/

Our recent Heart Connection 2022 episode was a live webinar on Advocating, Navigating, and Managing Your Path: School, Work, Disability – including information on available disability accommodations. We were joined by Estella Moore, LCSW, FAACM from the Emory Adult Congenital Heart Center in Atlanta, Georgia.

The panelists covered the following and more: 

  • 504 plans
  • Individualized Education Plans (IEPs)
  • College accommodations
  • Workplace accommodations
  • Disability accommodations
  • and more!

You can watch the recording of the live panel here: 

For more information and the resources mentioned in the presentation:

  • 504 Plans & IEPS:
  • Employment
    • Making It Work: Managing your health condition through ADA workplace accommodations
    • A Guide for Employees 2020 by Sheryl Ellis, PHRca, SHRM-CP, ADAC
    • JAN – Job Accommodation Network askjan.org
    • Equal Employment Opportunity Commission (EEOC) 
    • ADA National Network and Regional Centers 
    • Equal Employment Opportunity Commission (EEOC) 
    • ADA National Network and Regional Centers 
  • Disability:

Our Heart Connection 2022 webinar series provides educational presentations each month until November 2022 for patients, families, care team members, etc.,  in the CHD community. If you have follow-up questions from any presentation, a topic you’d like to see us cover in the future, or are an expert willing to collaborate, we would love to hear from you. Email the HC 2022 team today: info@conqueringchd.org





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