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Reader response: Right Brain: Withholding treatment from a child with an epileptic encephalomyopathy


I read with interest the Resident & Fellow Right Brain commentary by Drs. Rothstein and Lewis1 on the case of Charlie Gard. British baby Charlie Gard was at the center of a legal battle that captured the attention of the entire world in July 2017. Charlie Gard had an incurable rare genetic neuromuscular disease (mitochondrial DNA depletion syndrome), which affected his muscles and ability to breathe on his own. Doctors wished to withdraw life support, but Charlie’s parents fought a prolonged legal battle to keep him alive.

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