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Editors' note: Right Brain: Withholding treatment from a child with an epileptic encephalomyopathy


In “Right Brain: Withholding treatment from a child with an epileptic encephalomyopathy,” Drs. Rothstein and Lewis discussed ethical considerations in the case of Charlie Gard, an infant with a mitochondrial DNA depletion syndrome whose parents unsuccessfully lobbied for him to receive an experimental therapy prior to his death in 2017. We received several responses. Dr. Sethi argues that while no effort or expense was spared to save Charlie, it is important to address the challenging but relevant dimension of utilitarian bioethics in the discussion.

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