Jude was born in July 2016 with a heart defect and was placed on the transplant list at only three and a half months old. It is with your support and donations that help us help families like Jude.
At the event, we will have prizes for the 1st, 2nd and 3rd place foursomes, as well as door prizes, raffles and contests throughout the event.
Breakfast, drinks and a luncheon following the tournament is included in the price. Please see flyer or website for all event details and to register for this event! Space is limited!
If you would like to sponsor this event, or for any questions, please email rebecca.perrotto@haydenshe
On July 25, 2015 our miracle was born. When Jude was born the amazing doctors at Children’s Hospital of Philadelphia allowed Jude the time to show him how his heart could function. At 5 days old he had his first catheterization. This viewed how his aortic arch looked and opened his left ventricle to start working better. At 10 days old he had open heart surgery. After 3 weeks in the hospital. We took home our healthy baby.
October 25 Jude was breathing fast and admitted to Lehigh Valley Children’s Hospital believe to have a common cold. On November 8 Jude was sent to CHOP by helicopter. He was in severe heart failure. He had another catheterization to open a blockage in his aorta. Unfortunately it didn’t make a difference. 5 days later they tried another catheterization without change. December 19 we made the decision no parents wants to make, we listed him for a heart transplant. After 74 days of living at The Ronald McDonald House and having our family split up, the end of January we went home with a continuous iv medication. During our many trips back to CHOP his heart was showing positive change, which was not at all expected. March of 2016, Jude returned to CHOP for 5 days and he was weaned off is life sustaining iv medication. His heart has done so well that in December 2016, Jude came off the transplant wait list!! We don’t know what the future holds for him. We do know there will be other catheterization and a valve replacement as well as a life time of follow up visits in Philadelphia. Through it all, he is such an amazingly strong and happy person who has showed us that miracles do happen.