Hello from AFTD- We have some exciting news that dedicated volunteers with AFTD, Tiffany Turner and Stacy Rathbone are hoping to share their time and talents and create a new caregiver support group for those affected by PPA in the Tulsa, OK area. Tiffany and Stacy would like to gather interest before choosing a time for the group. They are tentatively planning to hold the meetings either every third Tuesday or Thursday of each month at 6:00 p.m. The length of the meeting will fluctuate with the number of attendees, but will usually run an hour to an hour and a half. If you are interested, please respond directly to Tiffany at email@example.com or 918-928-4700 and let her know if you have a preference of days/times – recognizing we won’t be able to accommodate everyone, but we will certainly attempt to provide the group at a convenient time.
Tiffany is a medical speech-language pathologist who specializes in the adult population, for both rehabilitation as well as adaptation with progressive diseases. Tiffany received her Master of Science and Bachelor of Science degrees both from Oklahoma State University where she graduated at the top of her class. She opened Swallowing and Neurological Rehabilitation in 2014 to fill a need in the community and offer specialized outpatient adult speech pathology services, which she feels are often misunderstood and underutilized. Tiffany has always had an interest in the adult population, including specifically progressive diseases. She is on the Tulsa MDA team, where she serves patients who have ALS and other neuro-motor diseases to address quality of life issues throughout disease progression. Tiffany has experience working with patients with PPA, and this population is very near and dear to her heart, so she is very excited to begin this new adventure with a local support group.
Stacy is a clinical fellow speech-language pathologist who recently received her Bachelor of Science and Master of Science degrees from Northeastern State University where she graduated summa cum laude with both degrees. She completed her internship with Tiffany her last semester of school and loved this population so much that she is now working at SNR for her clinical fellowship year. Stacy treats patients with PPA and recently had the idea to begin a local support group after being asked by a patient if there was any way she could meet some of the other patients with her diagnosis. She is very excited to help lead this new resource in the Tulsa community.
We know how helpful it can be to talk to others experiencing similar situations and to get support. Connecting with others who understand PPA can be a lifeline for emotional support, practical problem-solving and finding resources. We hope you join Tiffany and Stacy and receive this much needed support.
We hope you take advantage of this space Tiffany and Stacy are creating and join them for this newly-forming group in the Tulsa area. Take Care, Bridget
Bridget Moran, MPH
Support Services Manager
The Association for Frontotemporal Degeneration
Radnor Station Bld 2, St. 320,
290 King of Prussia Rd., Radnor, PA 19087
Direct: 267.758.8653 Office: 267.514.7221 x2538
Toll-free HelpLine: 866-507-7222
www.theaftd.org AND www.aftdkidsandteens.org